Saturday, Dec 7, 2024 at 8:30am
Welcome to the 8th Annual Hope for Lillian Grace Reindeer Run 5k & 1 Mile Fun Run!
This event goes to support Hope for Lillian Grace! Hope for Lillian Grace is a 501(c)(3) set up to benefit Lillian & Quinn Ball and their family as they continue their lifelong journey with Autosomal Recessive Polycystic Kidney Disease (ARPKD).
Calling the past few years easy would be an understatement for the Ball family. Lillian Grace (9) received her much anticipated kidney transplant along with right kidney nephrectomy on May 11, 2021.
Just shy of 4 weeks later, on June 7, 2021, Quinn Renee, the family's second ARPKD warrior, was born. Although Quinn did not have an extensive NICU stay like big sister, her ARPKD complications were in full force from day one. Those complications would ultimately land Quinn in Wolfson Children's Hospital on August 10, 2021. The primary side effect of ARPKD is hypertension; Quinn was diagnosed shortly after admission for hypertensive cardiomyopathy. She subsequently spent 51 days in Wolfson Children's Hospital CVICU where she worked her heart back to full strength. Year to date, Quinn has had two 911 calls, one transport to Wolfson, two extensive ICU stays, and regular weekly therapies to make up her development.
Also during that time, Lillian endured countless transplant clinics in Gainesville and one hospital admission herself. The family has again endured a trying season of ARPKD and relies heavily on this annual event to help them offset costs from both the medical expenses as well as the peripheral expenses. Below are some highlighted costs that you help cover by participating!
